Up at 5:15 a.m. and leave at 6:00 to make it for a 7:15 appointment for blood work on Friday. Then for a liver biopsy. That didn't take that long but he had to lay there for 3 hours after to make sure there was no bleeding. Then off to see the physician's assistant, the doctor was out, for the results of the morning blood work and a check-up. His liver and kidney functions were all normal, waiting to see the results of the thyroid, adrenal & pituitary. That takes several days. He is still sleepy most of the time, sleeps a lot. But he got the green light for the infusion. It was scheduled for 2:30 but didn't get it until 4:00. Since he had been over 6 weeks without treatment, the doctor needed to write a new order. (couldn't take last 2 of the first round because of high liver numbers and couldn't take the first of the second round since he was on prednisone). We never got home until 6:30. He went straight to bed and it is now 4:00 p.m. on Saturday and he has slept most of time. Hope tomorrow is better.
We met someone in the waiting room who is at the end of the same trial (2 years) and he never had any side effects. Don has had many. Also in re-reading the information we were given on our first visit, about 80% of the 242 having completed the study experienced a side effect from the first drug he received and only 10-15% from the drug he just started. Here's hoping.
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