When I was at the hospital with Don on Tuesday he starting asking questions like "Is it dark out?" "Are the lights on in here?" "Why is the TV so dark?" He was losing his eyesight. He described it like looking through a straw, he could see me as an outline but couldn't see my face, etc., etc. Wednesday morning an ophthalmologist saw him thoroughly checking his eyes and couldn't find anything wrong with them. He was sent for an MRI of the brain, (melanoma also metastasizes to the brain), luckily the MRI didn't show anything abnormal. When I got there, his eyes were really dilated because of the eye exam yet he thought it was really dark in and out. Dr. Weber came in and said a blood test was ordered to check this rare condition the ophthalmologist thought might be the problem. It needs to be sent away and takes about a week. Don has an appointment on the 23rd with the ophthalmologist for results.
If I was hearing these series of events from someone else I would almost think they were making it up. It is totally crazy how his body is reacting to everything. Needless to say he is off this study too. We don't know what the next step regarding the cancer, right now they're concentrating on his eyesight. A home health physical therapist is coming in the morning to make sure he can function safely, should he have a cane, etc. Next week someone from a local society for the blind will be in. They have put him on a steroid again hoping that helps. It's not as strong a dose or for as long a period as the previous stretch that messed up his blood sugar but he will test his sugar level, just in case.
On a good note, through all this crap there have been some pretty awesome things happen. For example, the people we're renting the RV pad from also own a house with a huge carport in the same community that is for sale. They have already moved to their new house. They said that since we were going to be here in the summer heat, we could move the RV there to be out of the sun. That will save our roof and on electricity using the AC. They are not charging us more. We can use the garage and they are even letting me use the laundry room. We have a washer/dryer in the coach but it's not good for sheets and jeans, leaves them way too wrinkled. Plus its not really big enough for blankets etc. They were going to have us move this week-end but because of the latest developments they, along with another couple and another man, moved us this morning so that we would be all set up in our new location before Don got home. The other couple even brought over a patio table & 4 chairs for us to use. They spend the summer in North Carolina. We are blessed. There are a lot of good people out there.
Our heart is heavy with the news. Give Don a hug from Chuck and I and hug yourself too. You've been great friends and we wish you were closer so we could be there for you. Love you guys. Becky
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