In my last post I mentioned that they were giving Don 10 days then were going to start another treatment. Well during those 10 days he was on 2 very strong anti-biotics, prednisone, a pill to control blood sugar and one to reduce the stomach acids. Well by now we all know how he reacts to medication, it really did a number on him, which got him discouraged, angry and depressed. It got so it was very difficult for me to keep my own spirits up. Don mentioned, and I agreed, he should get a couple of weeks off drugs. He's been off everything for 5 days now, but still needs more time before they start pumping him with more.
He had a doctor's appointment today. The first thing he said was that he needed a vacation from the drugs, like 4 weeks. So tomorrow he is going for an MRI of the brain and on the 27th he will be getting his CT scans so they can have a base line. Then he will start a new medication, not a clinical trial. That last drug was specifically for melanoma that has that BRAF mutation that I mentioned before, and after just 5 days, the tumors on his liver had shrunk 15%. But again, it was part of a clinical trial and had to be given in a specific dose. The one they are starting him on is also for the BRAF mutation but they are going to start him in small doses and progress as his body will allow. Here's hoping it shrinks those nasty tumors. Hopefully we will go on a 10-14 day trip to get a change of scenery. I will keep you posted.
Do what you need to do. Quality is important and you both need some quality time. Love you guys.
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